Regional Non-Governmental Organization

"Children and Parents Against Cancer"

Regional non-governmental organization "Children and Parents Against Cancer" is a national Russian non-profit organization founded in 1998 and based in Saint Petersburg. The organization unites parents of children with cancer, parents of childhood cancer survivors and bereaved parents.

Mission Statement: Advocating the rights of children with cancer; guaranteeing access to the most advanced treatment and rehabilitation opportunities for every child with cancer.

Activities:

 

	Educating parents of children affected by cancer about the rights of their sick children and the rights of their families, helping them to attain these rights;
	Representing interests of children with cancer in the governmental authorities and other official bodies;
	Providing access to information for parents of cancer-affected children about their child's disease and new methods and possibilities of treatment in Russia and abroad;
	Creating favourable legislation facilitating solution of the problems facing children with cancer and their families;
	Raising public awareness about childhood cancer through targeted strategic communication, publications and educational activities;
	Instigating productive dialogue for building consensus about this sad phenomenon among key decision makers, opinion leaders, community activists and other players;
	Launching media outreach to shape favourable public opinion and generate news coverage of the issue;
	Assisting in acquisition of necessary medicines and medical equipment not available in hospitals;
	Organizing cultural and recreational activities and holiday celebrations for cancer-affected children undergoing treatment in hospitals;
	Organizing rest and relaxation for children with cancer and their siblings;
	Carrying out charitable activities for the benefit of children with cancer;
	Searching for the blood donors for children with cancer undergoing treatment in hospitals.

Chairman R. Yavorsky